Thank you for all your hard work, love and friendship. You’ve helped us more than you could ever know. Last night our pulseguard alerted us to two major apnea’s. It’s scary to think how different our life would be without you and NARA.
K - Comber
I just want to say thank you. No matter how busy you are, NARA has always been there. Without your help, giving me a nebuliser, I would not be alive now. Thank you from the bottom of my heart (and my lungs!) Xx
P - Burgess Hill
Thank up for all your help NARA, your equipment has made a huge difference and allowed H to leave the house without worrying about how she will take her next treatment. You are all amazing xxxx
S - Portsmouth
Thank you for such great job and me be able to sleep those precious couple of hours when babies were asleep without worry what if...
A - Harlow
I have suffered from Asthma since I was born. Like most children I spent most of my childhood and teenage years in hospital. When I was 28 I was involved in a very serious road traffic accident where I was severely injured. Since the accident I have not been able to keep myself out of I C U and hospital for very long constantly relaying on nebulisers steroids and injection to keep me going. I now have a very severe type of asthma called brittle asthma. This means I can have an asthma attack with almost no warning at all, I suddenly just can’t breathe. I go blue in the face I have pins and needles all over my body and that normally means I will be put on life support where they take over my breathing because I’m not able to breath for myself. I was told by another asthma sufferer whilst in hospital about NARA - The Breathing Charity that they could help me with medical equipment, the latest breathing machines all I had to do was to get my Doctor to fill in a form to get on board. Since I have been dealing with staff there I have found it easier to keep on top of my nebulisers and keeping the mask and chambers clean and get replacements for everything I have.I even have a travel nebuliser which is essential when I have hospital appointments which could be up 50 miles away. I like that all the nebulisers come brand new and with carry cases also I really like that I can ask for a new nebuliser on the Monday and by the Tuesday I have it here ready to go. I also find it very nice to have someone else to talk to about how I’m felling and what can help me. I think NARA is a Brilliant charity to have, and I’m very proud to help raise money for such a wonderful organisation I honestly think without NARA I would have spent much more time in hospital and now I can stay at home with my family and get better in my own environment. Thank you so much NARA Andrew, Stevenage.
How infinitely you've made my confusing and scary little world easier. The stupid stuff that no one realises, the fact that my nebs used to take nearly two hours and now take less than 45mins. The fact I can nebulise in the cinema with the portable, the ability to be somewhat subtle with nebulisers. Not stressing about the dodgy design of tubing. The fact that even when things kept being awkward and breaking you got things to me the next day so my exams weren't disrupted.
You are doing the groundwork, mopping up the mess the NHS make when they leave people with inadequate supplies. People don't understand why the NHS don't supply decent things, but the fact that there is someone who mops up the mess and sorts it out is awesome. You genuinely give a damn about people. You care about our quality of life - so we can do more than just basic survival. You make my fairly challenging little life significantly easier and you've no idea the difference that makes to me and the people around me.Sophie - Leeds.
I primarily care for patients with chronic and often frightening breathlessness and much of my work I work as an advanced respiratory nurse practitioner for a group of GP practices (Main Practice Shipley Medical Centre) and have worked with NARA for the last 5 years. I primarily care for patients with chronic and often frightening breathlessness and much of my work is in reducing the symptoms of severe breathlessness. NARA provide medical equipment to my patients which helps in reducing those symptoms and allows me to provide a management plan for breathlessness using medical equipment of high quality that the patients know has a helpline for if anything happens. This gives them reassurance and peace of mind. Prior to using NARA, my patients bought their own equipment, often at a high cost, with no guarantees that it would do what they wanted it to do. In addition there was no way of maintaining the equipment, so I could not guarantee that it would work when they most needed it and if it broke down they could be left weeks while they found the money to buy a new one and get it delivered. I recently referred a gentleman with advanced lung disease who'd had many admissions to hospital because he didn't know what to do when he got most breathless. He and his wife found this very frightening and had no choice but to ring an ambulance. He was often only kept in for a few hours before being discharged home after a frightening experience. I referred him to NARA for a nebuliser and wrote him a management plan explaining what to do in the event of severe breathlessness and when to use a nebuliser. He received the equipment and has not been admitted to hospital since. He and his wife feel reassured by having the nebuliser but also by the reassurance that if it breaks down they have someone who can help them whenever it is. Many thanks, Rob.
NARA - The Breathing Charity has been a great help to Morris Avenue Surgery, Coventry always quick and helpful to the patients we refer to them. Patients have always come and said how happy they have been with the service they received and the follow up calls they get from NARA. The charity has good communication with the surgery always willing to help and answer any questions for us. NARA is a charity we would highly recommend.
I have a child, who suffers from apnoea (stopping breathing). She was only two weeks old when we found out that she had apnoea and this changed the whole families way of life. I would like to say charities like NARA are a great help. My daughter also needed a humidifier so the hospital said to go and get one. Not everyone can just go out and get one as they do cost quite a few pounds and not everyone has this sort of money spare, this is where NARA helped us again by buying the humidifier. I would like to say a big thank you, if it wasn't for charities like NARA a lot of people would be left helpless. So if you can help please do, your not just helping a child, your helping the child's family to have a near as possible normal life. Thank you again NARA and thank you for reading.
We're only to pleased to be able to help, having had our youngest son born with severe breathing problems. He was born nine weeks premature, weighing little more than a bag of sugar. I wished you'd been around when he was born 23 years ago. He stopped breathing twice in my arms and I was terrified to take him home, when he was two months old, weighing still only four and a half pounds. He battled on for several years and then seemed to catch up with his contemporaries and overtook them too eventually reaching 6ft4, he is our 'gentle giant'. He's a lovely young man with a lovely nature and we count our blessings and thank god for him everyday. He has just got married, so that was another wonderful day for us all. Maybe his story will give hope to other mums. God Bless you all in your work.
I cannot thank NARA enough for the loan of their nebuliser. If it wasn't for this charity I would not have the quality of everyday life. I Am able to go out and have my neb with me should I need to use it, which I have done on several occasion's. It is a great charity that I will carry on supporting and raising money no matter how large or small as every penny counts to help another patient like myself to get the help. Thank you so much NARA you are a great team.