Tel: +44 (0) 1604 494 960

The Dynamic Duo

This is a story about two of NARA’s patients who live every day with life limiting conditions including Ehlers Danlos syndrome, epilepsy, Addisons disease, Multi System disease and Asthma to name but a few.NARA help both these young people with equipment and have recently found...
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Our Tribute to Sir David Amess, MP

Following the tragic death of Conservative MP, Sir David Amess, NARA – The Breathing Charity, would like to pay tribute and sincerely thank him for his kindness and assistance given in the early days of our work.  Although not our local MP, David keenly supported a number...
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Anita Simmons – 1953 to 2021

The Trustees, staff and patients of NARA – The Breathing Charity were saddened at the news of the passing of Anita, especially myself, Ann Jiggle, and my husband, Mike. Until the end of 1983, although living not too far from each other, our paths didn’t cross, but by the...
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BUILDING MY FITNESS – HELPING ME BREATHE.

I cannot thank you enough for getting this bike for me, I’m thrilled. I can’t tell you how grateful I am. It allows me to get out of breath in a safe and controlled way which means I can work on building my fitness which is something I’ve not been able to do for...
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MAKING HIS FIGHT MUCH EASIER.

Dear A, Just wanted to write to you about how important a nebulizer is to my husband. My husband was diagnosed with tongue cancer 5 years ago, he underwent vigorous and intense radiotherapy and chemo which left him with a severe burnt mouth and tongue, so bad was the treatment it...
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NARA and Covid 19

We are certainly living through strange and difficult days. Most of us are separated from extended family and friends at a time we would wish to be close, especially those who find themselves in hospital, or to be there to comfort those who have sadly lost dear ones. Throughout...
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A STRANGE DAY.

Yesterday was a strange day!  NARA’s prime job is our home visits and of course at this moment in time we cannot do these as we would wish. However people more than ever need our help with equipment and accessories.Yesterday a gentleman in his nineties called our helpline to...
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NARA – The Breathing Charity will be strictly following government guidelines regarding the Coronavirus for the foreseeable future

NARA – The Breathing Charity will be strictly following government guidelines regarding the Coronavirus for the foreseeable future. Please see link for advice https://www.gov.uk/government/topical-events/coronavirus-covid-19-uk-government-response Our work will carry on as...
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PulseGuard working together with NARA The Breathing Charity – 12 days of Christmas

Whilst PulseGuard was originally developed as a seizure monitor, we work with other special organisations like NARA The Breating Charity, that help fund PulseGuard monitors for other complex medical conditions that cause changes to the heart rate and can be potentially life...
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NARA’s NORTHERN TRIP – PART TWO.

Day 5Today we took off to the highlands of Scotland, taking in the scenery and leaving new equipment with patients living in Dunoon and Strathpeffer, and visiting doctors surgeries in Pitlochry, Dingwall, and Loch Fine leaving equipment where necessary. A very long, hot, but very...
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WEBSITE UPDATE

Our website, gallery, stories and news have not been updated for a while for which I apologise. We only have a small number of staff at NARA and a few of us have had personal problems with illness and bereavements over the last year or so, which have left us a bit depleted. We...
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MY DAUGHTER’S DAILY FIGHT

A mother commits to verse to explain her young daughter’s battle to breathe. BREATHE IN, BREATHE OUT! Breathe in breathe out, its easy as can be, but I listened and thought “hey it’s not for me”, My lungs are heavy and need a rest, it feels like an...
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A PATIENT’S THANK YOU

Hello my name is Scott, I am 20years old and have Downs syndrome and numerous complex health needs including Brittle Asthma and Bronchiectasis. I developed asthma at the age of 18 months old after I had chronic pneumonia, I have been hospitalised numerous times due to Asthma...
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THANK YOU LETTERS

At NARA we get a good number of ‘thank you’ letters, many of which are very personal and inappropriate to share with a wider community.  However, there are occasions where those we help are happy for us to share their thanks.  This letter is one of those we have permission to...
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A - Coventry.

NO LAZING ON A SUNDAY FOR NARA.

Today we delivered more equipment to the Coventry area. I mentioned in our last story we had more waiting to go out. Our first visit was to a gentleman on the outskirts of the town. Mr B suffers from COPD and doctors felt he would benefit from a nebuliser. We knew he was not...
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URGENT NOTICE

Due to the adverse weather conditions we, as many, are finding it very difficult to get medical equipment out to certain areas. Please bear with us we will do our best to get what you need to you as soon as possible. Thank you for your cooperation and patience. Feel free to call...
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Sporting Bear Team at NEC.

FUNDRAISING WEEKEND WITH SPORTING BEARS.

November 2017 – A great joint effort at the NEC Classic Motor Show with Mike – Vintage Racecar, Ann and Kary – for NARA – The Breathing Charity and the Sporting Bears Team. The VR stand looked great with a great array of superb cars. Thanks to all those...
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Mrs-P--Leicester

OUR LAST MONTH

Well, our busy schedule never seems to get a break at the moment as illness within our staff still lingers. We have worked out the over the last month alone, we have taken and dealt with over 60 phone calls, faxed doctors surgeries 13 times, given out 19 nebulisers with 9 more...
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SOUTH WEST TRIP

Our trip starts on a happy note on route to Swindon to meet up with one of our long term patients. T has been a patient since the age of twelve when he was in a bad way with his Asthma. Living in the small village of Hinton St George in Somerset meant medical intervention was...
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AND IT STILL HURTS.

From one of our Mums……… Today, with a sharp and very painful shock, I was taken back to 5 years ago today……. Usually time hop makes me smile, say aww, laugh and smile……… Today it did not….. Five years ago today I remember as...
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FLYING VISIT. 

Last October, we spent another busy few days delivering equipment and visiting patients. This trip was not planned, but as there were twenty nine pieces of equipment to be delivered it made sense to take them. Our first call was to Carlisle in Cumbria. When a patient approaches...
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URGENT NEWS.

For a few months coming up to and over Christmas and New Year we have been and indeed still are very short staffed due to long term illness, this makes the staff we do have very busy looking after patients. We also have had a large influx of new patients needing urgent...
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THANKS FROM HOLLY.

Holly-May Humphrey – I’m going to restart my blog later and do a proper post on this. But I wanted to share a little message about NARA. NARA – The Breathing Charity is an amazing charity who over the years have literally got me back on my feet with medical...
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HELP FOR HOLLY.

No matter how we try to help our patients, life seems to deal some of them a challenging blow.  Our lovely young lady, Holly from Bradford, is one such patient.  She seems to jump the hurdles set before her and yet another is put in her path.  Just two years ago we thought...
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NARA’s NORTHERN TRIP.

As NARA – The Breathing Charity has grown as a charity, our community care programme has grown too. Having many more patients to care for can sometimes be a bit of a challenge with so few ‘hands on deck’.  However, these visits are very necessary for those we...
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A LITTLE MIRACLE.

One of NARA’s little ones proving everyone wrong. ‘Doctors said she could be blind and deaf, and never walk or talk’. This little one suffer from a condition called ‘charge syndrome’. From Great Ormond Street Hospital website, CHARGE syndrome is...
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A - Comber.

AMAZING ARYA

This little one already features on our website in the video Amazing Arya. Friends have set up a page to get her treatment to enable her to lead a normal childhood. https://www.justgiving.com/crowdfunding/darren-kerr-3   Take a look at Mum’s story. Aryanna was born...
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THANK YOU FROM NARA.

It’s always good to meet those who support our charity as well as those who benefit from the monies raised.  Just before the Easter weekend NARA’s Chairlady, Ann, went to RS Components in Corby to thank them for donating £1,000. RS Components have a dedicated team who...
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2017-first-3-months

The first three months of 2017 at Nara

The First Three Months Having already said goodbye to the first quarter of 2017, it’s good for us as a charity to look at what we’ve achieved so far in the new year.  Our day to day work includes dealing with requests for equipment, liaising with Hospitals and Doctors’ Surgeries,...
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Donation from Coventry Three Spires Round Table

Donation from Coventry Three Spires Round Table

Sincere thanks to all at Coventry Three Spires Round Table for their kind donation to NARA.  It was a great pleasure to speak to such a wonderful group who made us feel so welcome.  The money will greatly assist us with our Coventry Community Care programme helping those in need...
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THREE PEAKS FOR NARA

Today, NARA met up with some of the team at DFA Law – Northampton who took part in the 2016 Yorkshire Three Peaks Challenge completing it in under 12 hours.  Completing the challenge the team raised in excess of £1,600 to date with more money still trickling in from sponsors. ...
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Mrs B - Cambridgeshire.

A BIRTHDAY DONATION FOR NARA.

We are absolutely delighted to receive a wonderful donation of £478.30. When Mrs B celebrated her 80th Birthday she asked her family and friends to do a raffle, rather than receiving birthday presents, and for the proceeds to be donated to NARA – The  Breathing Charity –...
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FROM STRENGTH TO STRENGTH.

This little one is being helped by NARA – The Breathing Charity.  Born so very tiny and her lungs being so fragile a apnoea alarm (respiration monitor) was provided at the hospitals  request. She was diagnosed with a condition called PDA (see *below) and discharged home on...
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quads

ANOTHER COMMUNITY CARE VISIT – BIRMINGHAM & COVENTRY.

Yet another successful visit, short and fairly local this time going to Birmingham and Coventry. Our first call took us on a very special visit to our very first ever set of quads. Two of the little ones had been allowed home and due to breathing problems and apnoeas with the two...
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Northfields Surgery - Doncaster.

ANOTHER COMMUNITY CARE TRIP – SOUTH YORKSHIRE

Our most recent trip took us back to some patients and surgeries already helped and also to meet more new patients too. Meeting up with a long term patient to replace her equipment. This lovely lady has been helped by NARA for many years, and her equipment was getting a bit...
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H - Nottingham.

A MOTHERS THANK YOU

Who’d have known that 7 months on and this little super star would be fighting fit and full of fun! After a rather rocky start to life Henry is now thriving 😀 As we return the apnoea monitor that NARA the breathing charity loaned us, we are so eternally grateful to...
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UPDATE: A MOTHERS STORY

GREAT NEWS UPDATE: A MOTHERS STORY. I feel very lucky. I had my daughter at 30 +2wks, my waters broke at 20+4. She weighed 2lb 9.5 oz (1.17 kg) she was critical for 10 hours but managed to fight every step of the way. She did have a rough journey, she suffers from central apnoea,...
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A note from those who took part in the Yorkshire Three Peaks Challenge

Yorkshire Three Peaks-Conquered  ‘Team DFA Charity Walkers’ duly completed the Yorkshire Three Peaks Challenge, with a ‘team time’ of 11 hours 54 minutes, sneaking in just under the 12 hour ‘limit’!   Assisted by guides Adam and Mark the team made good time and even managed a...
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DFA LAW – news update

All at NARA – The Breathing Charity would like to say an huge ‘thank you’ to all at DFA LAW.  Saturday saw these brave members take on the challenge of the Yorkshire’s Three Peaks in an effort to raise money for NARA. And what a fantastic job they have done, all...
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Update on The Yorkshire Three Peaks Challenge – DFA Law

  Saturday 17th September sees these brave members of DFA Law take on the challenge of Yorkshire’s Three Peaks in an effort to raise money for NARA.  Over the past weeks and months they have all been in training to ensure they succeed.  NARA’s Chair, Ann Jiggle,...
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A TYPICAL ‘COMMUNITY CARE’ VISIT

We are often asked ‘WHAT DO YOU DO’ so thought I would give a little insight info into one of our typical visits. I hope you will take time to read and enjoy. Our ‘community care programme’ https://naratbc.org.uk/community-care-programme/ is one of the...
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A Mother’s Story

My daughter, was born 10 weeks premature and suffers from Central apnoea, where her brain forgets to tell her lungs to breathe, this is because she was so premature. Her first episode was at 8 weeks old, at home, we called an ambulance and had to do CPR. She was rushed to...
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Andrew’s Story

Hi my name is Andrew, I’m 38. I live at home with my wife and two 2 sons. I have suffered from Asthma since I was born. Like most children I have spent most of my childhood and teenage years in hospital (EG great Ormond street hospital, and the royal Brompton specialist lung and...
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Jonah – one happy little boy!

One happy little boy with his new bike, well done Jonah!
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  • New Baby

Supporting all ages

Since 1984, with financial assistance from the public such as yourselves, we have been able to assist many who suffer or know those who suffer from a variety of respiratory conditions.
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Ewan’s Story

Ewan was a tiny premature baby boy, who due to an early birth suffered from a specific form of apnoea (stopping breathing) that could happen at any time, day or night.
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Hollys Story

Holly’s Story

Holly had spent many months hospitalised and was wheelchair bound when at home as she battled on a daily basis with her brittle asthma.
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DFA Law

DFA Law – ‘Yorkshire Three Peaks Challenge’ Fundraiser

On Saturday 17th September, 9 members of the DFA staff, Clare Towers, Jo Harrison, Wendy Davidson, Hannah Tarlton, Colin Mitton, Innes Macaulay, Paul Currie , Tom Harrison and Philip Humphrys are intending attempting the Yorkshire Three Peaks. The Yorkshire Three Peaks is a 24...
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NARA addresses Ely Rotary meeting

Breathing new life campaign - Important speech at Ely Rotary meeting
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Support Baby Melody

Baby Melody’s mum sets up fund-raising Facebook page for NARA.  Melody was born 10weeks premature and suffers from central apnoea where her brain forgets to tell her lungs to breathe.  Her condition is directly relative to her premature birth.  Hopefully she will grow out of this...
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Thank You Oddfellows

We would like to say a big big Thank You to The Grand Provincial Grand Master, Brother Director Tony Luckett and all Friends at The Oddfellows, at Coventry Godiva District Lodge, those from Leicester and also Lemington Spa. Tony very kindly made NARA – The Breathing Charity their...
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Thank you to UKH Foundation

A huge thank you to the UKH Foundation for their significant funding to allow NARA to assist patients in the Manchester area via our Community Care Programme. Please visit ukhealthcare.org.uk to find out more about their organisation.
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Back from the Brink

A Mother`s story Our identical twins, Erin and Kaitlin, were born at 36 weeks weighing a sturdy 7lbs 6oz and 7lb 3oz respectively. The first 6 weeks of their little lives went fairly normally, settling into family life at home with their 17month old big sister Ellie. We were due...
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Wedding Celebrations!

News from Australia that NARA’s first baby helped - Adele - got married. Adele, originally from Northampton, is a milestone in the charity’s history, just as her wedding is a milestone in her life. We send the happy couple all good wishes for their future.
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Thanks to The Crerar Hotels

NARA would like to take this opportunity to sincerely thank The Crerar Hotels Trust for their very generous donation of £5000. This will be of great significance to our work and patients in Scotland, and indeed, medical equipment has already been allocated to areas in and around...
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Our little boy – update

A letter from the parents of ‘Our Little Boy. A letter from the parents of ‘Our Little Boy.  `Our little boy’ is now one and a half. Since being a few days old, he has had regular apnoea attacks. For an unknown reason, he stops breathing while he sleeps and is unable to recover...
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McNaughtons Newsagent.

A Big Thank You to Mr & Mrs Critchley and all of you who fill the charity boxes up at McNaughtons Newsagents on such a regular basis. Recently the grand sum of £210 was raised, a massive ‘Thank You’ to you all for your continued support.
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Save The MR10

NARA – The Breathing Charity has used Graseby MR10 apnoea alarms/respiration monitors for over 30 years, in fact it is the reason NARA exists. The need for respiration monitors by two families whose babies suffered apnoea attacks (stopping breathing) bought about this small...
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